Editor's Note: NSA member Shauna shares her challenging story about surviving with cancer and how she scrapbooks to make sure her children and extended family know all about her with whatever might come.
Cancer sucks. There's no doubt about it. There isn't any way to
say it nicely. Or even easily. The words don't roll off my tongue
voluntarily. I have to force them out. Each time I say it, I can hardly
believe it. It's hard to accept. I have cancer. It's true. Thinking or
feeling otherwise doesn't change it. It's still there. No matter how
hard I try and forget. I have cancer. Those three words have changed
everything.
It's my new normal. If you can call it that. I can't change it. I
can't control it. I can't make it all better. I can't pretend it didn't
happen. I can't make it go away. I can't explain it away. I can't
justify it. It just is. I just have to accept it and deal with it and
live on the best i can. For my family and my children. I have to make
the most of it, learn from it, become a better person because of it and
fight like heck so I can be there for my two children as they grow up
and experience what life has to offer. I don't want to miss a single
moment. I want to be there when they get their first
girlfriend/boyfriend. When they graduate from high school. When they go
off to college. When they get their first job. When they get married
and have kids. I want to see them win Olympic gold medals. And I want
to be a grandmother. I want to live to be 90 and die of natural causes.
Not cancer. Cancer sucks.
I also want them to grow up with a mother who loves and knows them
like only a mother can. I can tell by just a look if they are coming
down with something. If they are sad, happy, etc. I know them like I
know my own heart. They are my heart. Everyone needs their mom, even
when they are 40 years old like myself. I want them to feel my love and
draw strength from it. To know I will always be there for them. In good
times and bad. I want to nurture them, love them, care for them,
protect them and inspire them to be great human beings. And I want to
be there to see how they turn out. It's what I look forward to most.
But it's possible i might not be there to see it. Because...I have
stage 4 cancer. And cancer sucks.
There is no cure. Only hope that they will find one someday soon.
Hope that the 3 days of chemothearpy every other week for 6-12 months
to indefinately will manage the cancer. Hope that it doesn't grow back.
Hope that I will win this fight and be in remission. Hope that I will
live to see my children blossom into teenagers and adults.
So it's so important that I scrapbook for them today. I want to
leave a piece of myself for them. So if and when I'm gone, they can
look and read through their scrapbooks and know how much I love them,
whether I'm here on this earth or not. I want them to know how I feel,
what I think, what I'm like, what I love, and how very proud I am of
them. I never want them to forget me and my love.
Cancer sucks, but life doesn't. Cancer actually has affected my
life positively, if you can believe that. Had I not been diagnosed with
cancer on June 10th, 2006, I would not have known the strength and love
of my community - from my family, friends, neighbors, children's
school, my husband's and my work (Hot Off the Press), soccer teams,
gymnastics/dance teams, supporters of the high school basketball team
my husband coaches, the online scrapbook community (I have this amazing
scrapbook full of strength and love from my online group "The Cropping
Cactus"), to total strangers that read about me in the local paper or
HOTP Inside Scoop, etc. I can honestly say I have a whole army behind
my family and I, supporting us. Bringing us dinners, cleaning our
house, calling, sending emails, cards, letters, organizing playdates,
carpooling my kids and I (I can't drive during chemo weeks) to our
various activities, sending gifts, giving pedicures and massages,
scheduling movie night s, donating plants for the "healing garden" in
our backyard, etc. I honestly find it very hard to feel sorry for
myself when my family and I are being spoiled rotten to the core.
Through and through. It's been nothing short of amazing. We appreciate
it so much and are so very thankful and grateful and lucky. It's like I
got cancer and won the lottery all in one day.
Through this experience I've learned a great deal. I've definately
learned how to become a better friend and member of the community from
the examples that are being shown to us. I've learned to not sweat the
small stuff. It's not important. "Nothing is more important than this
day" (My friend Paris Dukes gave me a bracelet that says that on it).
I've learned to be thankful and happy for each day. To make and take
time for the important things. To give more hugs and kisses. To tell
everyone I love them on a daily basis. To talk on the phone more. To go
on playdates with my friends. To slow down and enjoy the ride. To be
more tolerable and patient. I've also learned how strong I am and can
be. It hasn't been an easy summer. That's for sure. Our world was
turned upside down in a day. Without warning. But I survived the summer
and I'm doing well and tolerating the chemo and everyone tells me how
great I look. I believe it has to do with all of the positive thoughts,
wishes, praye rs, etc. that have come my way via the community. It
gives me hope. I tuck them all into a little pocket of my heart and
draw strength from them. I must have done something right in this
lifetime to deserve the love and support I'm receiving. I am so
thankful for it.
One thing I do have difficulty with is accepting help. I'm
learning how to do that too. People want to help. They want to do
something, to feel like they are making a difference. They care and
want to show it. It's hard for me, an independent woman who is used to
giving, to receive. But I'm working on it and it's making me a better
person and in turn it's making my children better people too. Everyone
around me is affected positively. It's quite extraordinary.
The cancer diagnosis has impacted my scrapbooking a well.
Afterall, scrapbooking has been my job for the last 7 1/2 years. I'm on
short term disability now and haven't worked since the week I was
diagnosed. Everything happened so fast. I miss it so much. I have this
need to create. I am full of ideas and need to get them out. I miss
working with the new product and doing magazine work. I miss my
co-workers. I miss creating. I miss having assignments and deadlines.
I miss the product development meetings. I miss it so much it hurts.
I've been journaling a lot since this all happened. It's so
important to get the words down. Especially with 'chemo brain'. I've
gotten so forgetful. I haven't been able to scrapbook yet due to a
number of reasons. One being that my mom moved down from Seattle and
into my studio while I was in the hospital for 13 days. When I came
home from the hospital, my scrapbook stuff was now in my living room,
in piles and boxes and cabinets. I had no idea where anything is. I'm a
very organized person and feel the need to organize my stuff before I
play. So I've been working a little bit on that each day, organizing my
stuff into my living/dining room space along with my husband's office.
It's taking a lot of creativity to make all of that work! In the
process though, I'm touching all of my "stuff" and getting ideas and
getting excited to play. I can't wait. I've been doing a lot of
shopping too!!! Another reason I haven't scrapbooked yet is that the
chemo knocks me out for the whole week and then I spend the next week
trying to catch up before I have to do chemo again the following week!
I basically have 2 weeks out of the month that I feel well enough and
have the energy to accomplish things. I need to move scrapbooking up on
my priority list!
I expect that my style might change some due to those
circumstances. I'm a very detailed, involved, product oriented
scrapbooker. I'm guessing that with less time and energy I will become
more of a simple scrapbooker, spending less time on pages and adding
more journaling. Because like I mentioned before, the words are what I
want to leave behind for my children. I want them to hear my voice
along with the photos (I also am letting others take the photos so I'm
actually in some photos now). One thing chemo and the menopause (forced
at age 40 due to a total hysterectemy) has done is give me insomnia! So
I keep a booklight by my bed and journal down all my thoughts and ideas
and page titles and quotes etc. as they strike me in the middle of the
night!
I'm also keeping a journal for each child where I write to them
nightly/daily and they have the opportunity to respond to me in the
journal. This is difficult for them to go through at their age (11
& 7) and having them have a safe place to record their thoughts,
feelings or ask questions of me, is very important. We've tried so hard
not to disrupt their lives, but how can it not?
So as you can see, I'm not "living happily everafter" like the
fairytale I had planned in my head, but I am "living" and I'm "happy".
It's hard. Don't get me wrong. Cancer sucks. But like in the
fairytales, you've gotta kiss a lot of frogs before you get to your
happy ending. Cancer is just one of my "frogs". My life is now a
"fractured fairytale".